Your ICD can save your life.
Your ICD (implantable cardioverter-defibrillator) is always checking your heart rate and rhythm. If the ICD detects a life-threatening rapid heart rhythm, it tries to slow the rhythm to get it back to normal. If the dangerous rhythm doesn't stop, the ICD sends an electrical shock to the heart to restore a normal rhythm.
Your ICD may also work as a pacemaker. It can fix a heart rate that is too fast or too slow. It may do so without using a shock.
Even though an ICD can help fix heart rate or rhythm problems, you may not want this at the end of life. Many people consider turning off their ICD when their health goal changes from living longer to getting the most comfort possible at the end of life. The shocks the ICD delivers are painful. Not being shocked will make you more comfortable at the end of life.
As you plan for your future and your end of life, include plans for your ICD. The decision to turn off your ICD is part of the medical treatment you want at the end of life. You can put this information in your advanced directive.
Turning off your ICD is legal. It isn't considered suicide. The decision to leave on or turn off your ICD is a medical decision you make based on your values.
Turning off an ICD isn't hard. The ICD isn't taken out of your chest, and you don't need surgery. Your doctor will use a computer to reprogram the ICD so that it doesn't give you shocks. This isn't painful.
Turning off the ICD won't cause death, and it won't make you feel worse. But because the ICD won't give you a shock if you have a life-threatening heart rhythm, this type of heart rhythm could lead to death.
Some ICDs are combined with a pacemaker. You can turn off the ICD without turning off the pacemaker. Turning off a pacemaker means your heart might not pump blood as well as it should. This could make you feel worse instead of more comfortable.
Depending on your heart condition, turning off a pacemaker could result in death.
You make the decision about whether or not you want to turn off your ICD. It can be a tough decision to make, but you don't have to make it alone. Look to your family, your doctor, your spiritual adviser, and your friends for help and support.
Visit the American Heart Association (AHA) website for information on
physical activity, diet, and various heart-related conditions. You can search for information on heart disease and stroke, share information with friends and family, and use tools to help you make heart-healthy goals and plans. Contact the AHA to find your
nearest local or state AHA group. The AHA provides brochures and information
about support groups and community programs, including Mended Hearts, a
nationwide organization whose members visit people with heart problems and
provide information and support.
The Heart Rhythm Society provides information for
patients and the public about heart rhythm problems. The website includes a
section that focuses on patient information. This information includes causes,
prevention, tests, treatment, and patient stories about heart rhythm problems.
You can use the Find a Specialist section of the website to search for a heart
rhythm specialist practicing in your area.
Resources are available at this website for people who
are caregivers and for those who are personally facing terminal illness, death,
and grief. There are also programs for health professionals who work with
people at the end of life.
From links on this website, you can
locate a hospice and view a list of other organizations. Also, you can read a
hospice and caregiving blog, an e-newsletter, and frequently asked questions.
You can use a link called "Share Your Story" to post your own story for other
website visitors to read.
The National Institute on Aging (NIA), one of the
centers of the U.S. National Institutes of Health, leads a broad scientific
effort to understand the nature of aging and to extend the healthy, active
years of life. The NIA funds research and provides information about health and
research advances to the public and interested groups.
Other Works ConsultedLampert R, et al. (2010). HRS Expert Consensus Statement on the Management of Cardiovascular Implantable Electronic Devices (CIEDs) in patients nearing end of life or requesting withdrawal of therapy. Heart Rhythm, 7(7): 1008–1026. Available online: http://www.hrsonline.org/Policy/ClinicalGuidelines/upload/ceids_mgmt_eol.pdf.Russo JE (2011). Deactivation of ICDs at the end of life: A systematic review of clinical practices and provider and patient attitudes. American Journal of Nursing, 111(10): 26–35. Also available online: http://journals.lww.com/ajnonline/Fulltext/2011/10000/Original_Research__Deactivation_of_ICDs_at_the_End.18.aspx.
October 19, 2012
Kathleen Romito, MD - Family Medicine & Rakesh K. Pai, MD, FACC - Cardiology, Electrophysiology
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