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Feb 07, 2012

Spotlight on Congenital Heart Defects

Support for patients with congenital heart disease.

Did you know that congenital heart defects are the most common type of birth defect, affecting nearly 40,000 infants each year? They are also the leading cause of infant mortality in the United States, costing roughly $1.4 billion nationally in medical costs each year. Fortunately, with increased awareness and prevention, we have the power to reduce the impact of congenital heart defects on the lives of infants and adults. Not only has research has helped patients with congenital heart defects live longer, with about 1 million adults currently living with this condition, but it has also helped further prevention through weight maintenance, diabetes control, quitting smoking, taking folic acid and avoiding drug use.

Are you or someone you know affected by or living with congenital heart disease? Here are some resources we hope you’ll find helpful.

CHD Family Information Pack

Mended Little Hearts’ Parent Matching Program

Follow My Heart PHR for Congenital Heart Disease

CDC's Five Facts about Congenital Heart Defects

Related

Deborah Flaherty-Kizer is CardioSmart

Deborah Flaherty-Kizer was born with a heart defect. Instead of allowing her condition to limit her, she regularly challenges herself physically and serves as a mentor to other heart patients.

Physical Activity Important for Children and Adults with Congenital Heart Disease

Individuals with congenital heart disease are encouraged to get active to promote better health later in life.

Cardiopulmonary Exercise Testing for Adults with CHD

Exercise testing provides useful information for patients with congenital heart disease.

Blood Clots a Major Concern for Children and Adults with CHD

American Heart Association releases statement with recommendations for preventing blood clots in patients with congenital heart disease.

Robby's Story: Tetralogy of Fallot

Robby Motta was born with Tetralogy of Fallot—four defects within his heart. Eight years later, Robby is an active second-grader.