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Feb 07, 2012

Spotlight on Congenital Heart Defects

Support for patients with congenital heart disease.

Did you know that congenital heart defects are the most common type of birth defect, affecting nearly 40,000 infants each year? They are also the leading cause of infant mortality in the United States, costing roughly $1.4 billion nationally in medical costs each year. Fortunately, with increased awareness and prevention, we have the power to reduce the impact of congenital heart defects on the lives of infants and adults. Not only has research has helped patients with congenital heart defects live longer, with about 1 million adults currently living with this condition, but it has also helped further prevention through weight maintenance, diabetes control, quitting smoking, taking folic acid and avoiding drug use.

Are you or someone you know affected by or living with congenital heart disease? Here are some resources we hope you’ll find helpful.

CHD Family Information Pack

Mended Little HeartGuide

CDC's Five Facts about Congenital Heart Defects


Sports May Be Safe for Children with Long QT Syndrome

Contrary to current guidelines, exercise may not be problematic for children with this congenital heart condition.

Those Born with Heart Defects Living Longer, Healthier Lives

A recent scientific statement highlights the importance of managing heart defects in older adults.

Careful Planning is Key to Safe Pregnancy for Women with Congenital Heart Disease

For women with congenital heart disease, meeting with specialists, risk assessment and counseling are essential when considering pregnancy.

Risk of Sudden Death Very Low in Children Born with Heart Defects

Sudden cardiac death is very rare in children with heart defects and rarely occurs during physical activity.

Growing Need for Heart Transplants in Adults with Congenital Heart Disease

Experts highlight the challenges faced by this population when it comes to receiving advanced therapies.