National. Founded 1973. Provides support to brain tumor patients. Offers pen pal program, free patient education materials, newsletter, publications and resource listings. Dedicated to eliminating brain tumors through funding and encourage research. Support group referrals and assistance in starting groups. Write: American Brain Tumor Association 8550 W. Bryn Mawr Ave., Ste 550 Chicago, IL 60631 Voice: 1-800-886-2282 or 773-577-8750 (patient services) Fax: 773-577-8738 Website: http://www.abta.org E-mail: email@example.com Verified: 7/25/2012
National. 42 state associations. 600 affiliated groups. Founded 1980. Advocacy organization providing services to persons with brain injuries, their families and professionals. Increases public awareness through state associations, support groups, information and resource network, seminars, conferences, literature and prevention programs. Guidelines for starting similar groups. Write: Brain Injury Association 1608 Spring Hill Rd., Suite 110 Vienna, VA 22182 Voice: 1-800-444-6443 (National Brain Injury Information Center) or 703-761-0750 Fax: 703-761-0755 Website: http://www.biausa.org E-mail: firstname.lastname@example.org Verified: 7/25/2012
National network. Founded 1980. Support and advocacy for families of coma and traumatic brain injury survivors. Provides information, referrals and support group for family members and survivors. Quarterly newsletter and yearly conferences for families, brain injury professionals and survivors. Write: Coma/Traumatic Brain Injury Assoc. 8300 Republic Airport, Suite 106 Farmingdale, NY 11735 Voice: 631-756-1826 Website: http://www.comarecovery.org E-mail: email@example.com Verified: 8/14/2012
National. 53 affiliated groups. Founded 1981. Support and information for patients who have been diagnosed with acoustic neuroma, a benign tumor affecting the 8th cranial nerve. Quarterly newsletter ($40/yr.), nationwide support group network, biennial national symposium and patient information booklets. Write: Acoustic Neuroma Association 600 Peachtree Parkway, Suite 108 Cumming, GA 30041-6899 Voice: 1-877-200-8211 or 770-205-8211 Fax: 1-877-202-023 Website: http://www.anausa.org Verified: 8/17/2012
National. Support and information for persons with brain tumors and their loved ones. Provides funding for research as well as client services for brain tumor patients and family members. Offers support group and treatment center listings, a monthly e-newsletter, conferences, literature, Patient Services Line, an online community, webinars, information and referrals. Assistance in starting and maintaining support groups. Write: National Brain Tumor Society 22 Battery St., Suite 612 San Francisco, CA 94111-5520 Voice: 1-800-934-2873 or 415-834-9970 (Mon.-Fri., 9am-8pm EST) Fax: 415-834-9980 Website: http://www.braintumor.org E-mail: firstname.lastname@example.org Verified: 7/2/2012
(BILINGUAL) National network. Founded 1988. Provides a family-to-family network to link parents of a child with a brain or spinal cord tumor with another parent with similar experiences for information and support. Offers free resource guide (English/Spanish), 'Parker's Brain Storm' (a book for children), Brain Tumor Family Camps, Teen and Young Adult Heads Up Conferences at Camp Make-A-Dream, newsletter, annual teleconferences (available for replay on website) and funds research. Write: Children's Brain Tumor Foundation 274 Madison Ave., Suite 1004 New York, NY 10016 Voice: 1-866-228-4673 or 212-448-9494 (Mon.-Fri., 9am-5pm EST) Fax: 212-448-1022 Website: http://www.cbtf.org E-mail: email@example.com Verified: 7/25/2012
Online. Founded 1993. Mission is to exchange support and information among people affected by brain tumors and related conditions including patient-survivors, families, caregivers and health professionals. Online support groups cover a large range of brain tumors, acquired injuries and other special interests. Write: The Brain Trust 495 Broadway, Ste 302 Everett, MA 02149 Website: http://www.braintrust.org E-mail: firstname.lastname@example.org Verified: 7/2/2012
National. Provides emotional support and exchange of information for patients with various brain tumors and their families. Information on research, medication and clinical trials. Chatrooms, support groups, video library and other resources. Write: Musella Foundation 1100 Peninsula Blvd. Hewlett, NY 11557 Website: http://www.virtualtrials.com E-mail: email@example.com Verified: 7/2/2012
International. Founded 2006. Support for families and caregivers of children suffering from low grade brain tumors (juvenile pilocytic astrocytoma, low grade glioma or pediatric brain tumor). Offers patient driven online support network through Yahoo, listserv, Facebook, e-mail discussion group, phone support and international conferences. How-to materials for starting a support group are provided on website. Write: PLGA Foundation 98 Random Farms Dr. Chappaqua, NY 10514 Voice: 914-762-3494 Website: http://www.fightplga.org E-mail: firstname.lastname@example.org Verified: 8/17/2012
Online. 188 members. Founded 2009. Opportunity for patients, family and friends to offer support, friendship, understanding and shared experiences. Members share information and resources for the treatment of Chordoma tumors and the day-to-day management of the disease. People with other skullbase tumors welcome. Website: http://ca.groups.yahoo.com/group/chordoma_support_group E-mail: email@example.com Verified: 7/2/2012
Online. Provides information, support, advocacy, resources and a means of communication for those diagnosed with benign brain tumors. Discussion groups, message boards, social events, videos and speaking engagements. Website: http://www.itsjustbenign.org E-mail: firstname.lastname@example.org Verified: 7/2/2012
Telephone. Provides support and education for survivors of traumatic brain injuries. Through the mentorship of fellow survivors, people unable to reach on-site support groups can be served, with a goal of gaining healing and insight through long distance communication. Meetings held on the 2nd and 4th Thurs. 7-8pm Contact Bill DeAngelo for more information and to get the call-in telephone number and passcode. Voice: 678-880-0441 (EST) E-mail: email@example.com Verified: 8/1/2012
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelpIf you find information that is not current, please contact American Self-Help Group Clearinghouse at: firstname.lastname@example.orgCopyright © 2012 American Self-Help Group Clearinghouse. All rights reserved.
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: email@example.com
Copyright © 2012 American Self-Help Group Clearinghouse. All rights reserved.
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