National. 150+ parent group networks. Founded 1974. Support, information and advocacy for families affected by Down syndrome. Promotes research and public awareness. Serves as clearinghouse and network for parent groups. Newsletter ($35/yr). Annual convention, phone support and chapter development guidelines. Write: National Down Syndrome Congress 30 Mansell Ct. Ste 108 Roswell, GA 30076 Voice: 1-800-232-6372 or 770-604-9500 (Mon.-Fri., 9am-5:30pm EST) Fax: 770-604-9898 Website: http://www.ndsccenter.org E-mail: email@example.com Verified: 7/24/2012
Model. 13 groups. Founded 1982. Self-help advocacy for people with developmental disabilities. Monthly chapter meetings. Members help each other resolve problems, gain self-confidence and learn leadership skills. Chapter development guidelines and newsletter. Write: Speaking for Ourselves 714 Market Street, Ste 326 Philadelphia, PA 19106 Voice: 1-800-867-3330 or 215-923-8600 Fax: 215-923-8601 Website: http://www.speaking.org E-mail: firstname.lastname@example.org Verified: 4/3/2012
National. Over 700 chapters. Founded 1950. Provides support for people with intellectual and developmental disabilities and their families. Advocacy groups and direct services. Monthly e-newsletter. Chapter development guidelines. Local group information on website. Write: The Arc 1825 K Street NW, Ste 1200 Washington, DC 20006 Voice: 202-534-3700 (day) Fax: 202-534-3731 Website: http://www.thearc.org E-mail: email@example.com Verified: 7/17/2012
Model. 30 groups in Washington. 7 high school clubs. Founded 1977. Self-help advocacy organization created by and for people with developmental disabilities. Provides help in starting new chapters. Monthly e-newsletter called Chapter Chatter. Write: People First of Washington P.O. Box 648 Clarkston, WA 99403-2079 Voice: 509-758-1123 Fax: 509-758-1289 Website: http://www.peoplefirstofwashington.org E-mail: firstname.lastname@example.org Verified: 8/17/2012
National. 130 affiliated groups. Founded 1983. Works to empower families of persons with intellectual disabilities through information and advocacy. Weekly e-mail updates and print newsletter for members. Networking, information and referrals, advocacy, phone support and conferences. Annual dues $40. Write: VOR 836 S. Arlington Heights Rd., #351 Arlington Heights, IL 60007 Voice: 1-877-399-4867 Fax: 605-499-1631 Website: http://www.vor.net E-mail: email@example.com Verified: 7/24/2012
Online. 1300 members. Founded 1997. Opportunity for families and professionals to discuss the unique aspects of supporting a person who is dually diagnosed with Down syndrome and autism, autism-spectrum disorder, or pervasive developmental disorder. Website: http://groups.yahoo.com/group/ds-autism E-mail: firstname.lastname@example.org Verified: 7/2/2012
Online. 725+ members. Founded 2001. Mutual support and sharing of ideas for parents who are, or who would like to, home school their child with Down Syndrome. Website: http://health.groups.yahoo.com/group/homeschoolinganddownsyndrome E-mail: email@example.com Verified: 7/2/2012
Online. 1000+ members. Founded 2000. Supportive group for families of persons with Down syndrome. Focus is on the families; not just the person with Down Syndrome. Website: http://health.groups.yahoo.com/group/upsndowns E-mail: firstname.lastname@example.org Verified: 7/2/2012
Online. 750+ members. Founded 1999. Support for families with children diagnosed with mosaic Down syndrome (MDS). Open to adults with MDS, and professionals working with them. Newsletter, pen pals, yearly conference. Website: http://health.groups.yahoo.com/group/mosaicds E-mail: email@example.com Verified: 6/29/2012
Online. Founded 1989. A UK-based organization of LGBT people who self-identify as disabled. Follows the social model of disability. Offers information, advice (on a non-professional basis) and social contact for members through online groups. Provides advocacy and campaigns on issues affecting disabled LBGT people. Provides online newsletters, news and notices. Write: BM Regard London, UK WC1N 3XX Website: http://www.regard.org.uk or http://facebook.com/#!/group.php?gid=131451632773 and http://uk.groups.yahoo.com/group/regardonline E-mail: firstname.lastname@example.org Verified: 7/24/2012
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelpIf you find information that is not current, please contact American Self-Help Group Clearinghouse at: email@example.comCopyright © 2012 American Self-Help Group Clearinghouse. All rights reserved.
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: firstname.lastname@example.org
Copyright © 2012 American Self-Help Group Clearinghouse. All rights reserved.
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