(A Program of the United Spinal Association) National. 22 chapters and 40 support groups. Founded 1948. Provides information and referrals on many topics to persons with spinal cord injuries and diseases, their families and interested professionals. Group development guidelines, bi-monthly newsletter, support groups and peer counseling. Online listing of local chapters. Write: Nat'l Spinal Cord Injury Assoc. 75-20 Astoria Blvd East Elmhurst, NY 11370 Voice: 1-800-962-9629 (Mon.-Fri., 8:30am-5pm EST) Fax: 866-387-2196 Website: http://www.spinalcord.org E-mail: firstname.lastname@example.org Verified: 6/28/2012
National. 340 affiliated groups. Founded 1990. Organization dedicated to the life-long concerns of brothers and sisters of people with special health, developmental and mental health concerns. Provides workshops on sibling issues, hosts listservs and provides training on how to implement Sibshops (lively workshops for school-age siblings). Write: Sibling Support Project 6512 23rd Ave. NW, Suite 213 Seattle, WA 98117 Voice: 206-297-6368 Website: http://www.siblingsupport.org E-mail: email@example.com Verified: 8/14/2012
International. 28 chapters. Founded 1994. Provides education regarding the impact of chronic illness and/or disability on a family. Information, referrals, phone support, e-mail correspondence and 'how-to' guides on developing a local group. Write: Project DOCC 18 Dunster Rd. Great Neck, NY 11021 Voice: 516-829-0786 Fax: 516-498-1899 Website: http://projectdocc.org E-mail: firstname.lastname@example.org Verified: 7/26/2012
National. 21 chapters. Founded 1946. Aim is to provide support and improve the quality of life for all Americans with spinal cord injuries and disorders. Write: United Spinal Association 75-20 Astoria Blvd. Jackson Heights, NY 11370-1177 Voice: 718-803-3782 ext. 7203 Website: http://www.spinalcord.org Verified: 7/25/2012
National. 34 chapters and 58 field service offices. Aim is to ensure that spinal cord injured or diseased veterans achieve the highest quality of life possible. Membership is available solely to individuals who are American citizens with spinal cord dysfunction as a result of trauma or disease. Must have served on active duty and had an other than dishonorable discharge. Support groups, publications, VA benefits counseling, magazine, information and referrals. Write: Paralyzed Veterans of America 801 18th St. NW Washington, DC 20006 Voice: 1-800-424-8200 or 202-872-1300 (Mon.-Fri., 9am-5pm EST) Website: http://www.pva.org E-mail: email@example.com Verified: 7/24/2012
Online. Provides a forum for quadriplegics (tetraplegics) to support and communicate with others who share the same condition. Not strictly a SCI (spinal cord injury) forum. Forum is for anyone who suffers a partial or full loss of function of all four extremities of the body. Website: http://www.makoa.org/quadlist.htm or http://www.facebook.com/quadlist Verified: 6/29/2012
Online. 1500+ members. Founded 1998. Listserv for and about adult brothers and sisters of people with special health, developmental and emotional needs. Opportunity for adult brothers and sisters to share information and discuss issues of common interest. Subscribers can connect with their peers, seek information about local services, create connections for their siblings and discuss the proper policies agencies should have toward brothers and sisters. Website: http://groups.yahoo.com/group/sibnet E-mail: firstname.lastname@example.org Verified: 7/2/2012
Online. Founded 1989. A UK-based organization of LGBT people who self-identify as disabled. Follows the social model of disability. Offers information, advice (on a non-professional basis) and social contact for members through online groups. Provides advocacy and campaigns on issues affecting disabled LBGT people. Provides online newsletters, news and notices. Write: BM Regard London, UK WC1N 3XX Website: http://www.regard.org.uk or http://facebook.com/#!/group.php?gid=131451632773 or http://uk.groups.yahoo.com/group/regardonline E-mail: email@example.com Verified: 7/24/2012
Online. Provides support for teenage siblings of people with disabilities. Website: http://groups.yahoo.com/group/sibteengroup or https://www.facebook.com/group/sibteen E-mail: firstname.lastname@example.org Verified: 7/26/2012
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelpIf you find information that is not current, please contact American Self-Help Group Clearinghouse at: email@example.comCopyright © 2012 American Self-Help Group Clearinghouse. All rights reserved.
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: firstname.lastname@example.org
Copyright © 2012 American Self-Help Group Clearinghouse. All rights reserved.
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